IVs, Clinics and USA!

Hey everyone!
So the last 2 weeks has been full of hospital visits.. On the 5th April I started my IV antibiotics for 2 weeks. Since i still have have my Portacath I'm having to have cannulas. This can be really stressful for me as I'm so needle phobic, but i just get on with it as i know i need the IVs to make me better. That night when i got home to do my IVs we noticed that my line was leaking, so we couldn't carry on and had to go back up to the ward the next morning. it turned out i didn't need a new one and they could just re-position it, i was very thankful for that as i don't have very many veins left!

Wednesday 7th April

Wednesday i had my CF clinic at my local hospital, seeing my consultant, physiotherapists, dietician and outreach nurse. My clinic overall was quite positive but we are a little concerned on my Lung function. Back late last year my Lung function was in the high 90's to 100, however we have seen it slowly decrease over the months. It is currently sitting at 79%. My Drs want it to go back up to mid 80s after my IVs or it will mean i will have to start a course of steroids, have a CT scan, and a bronoscopy to see if there is anything going on in my lungs that they can't see. But I'm feeling quite positive to try and get it back up, just a few extra physio therapy and nebuliser sessions.

Friday 9th April

Friday i had to go to Royal Manchester Childrens Hospital (RMCH) for my annual CF liver clinic. In this appointment we discuss my liver function, my spleen, and all about my platelet levels. So my Last ultra sound scan was in July 2015 and the results show that my liver is still enlarged and scarred but is still functioning well enough, and not needed any treatment yet, which is great! 
The next subject was my spleen. So since i last saw her my spleen has grown 2cm which isn't too great (but it isn't too major either) it just means we have to keep a close eye. As this is growing, it is also 'swallowing' up my blood cells, causing my platelets to drop. Platelets should be around 150 is, mine are around 94. At this moment in time again isn't too major, but if they continue to drop i may bruise/bleed a lot easier, meaning i will need blood transfusions if necessary. 

My liver specialist also said that she is going to book an endoscopy for me. This is to see down my throat into my oesophagus to see if i have any varicose veins. Due to my spleen being large, it can cause veins in my throat to burst, if this is the case then they will need to band round them to stop this from happening!

So thats the serious stuff out the way. I am so excited because on Tuesday (19th April) Me, my mum and my dad are all flying to Orlando Florida!  We are going on holiday for 2 weeks and visiting all the theme parks, were also going to watch the cheerleading world championships! I finish my IVs the night before we fly, so that makes it even more exciting!

Thankyou for reading,
speak soon!
Lots of love, emily xo