Fighting for 8 years💜

Wow, so I can't believe that yesterday marked 8 years since I was diagnosed with Cystic Fibrosis.

It has been a long and very bumpy road, but I'm here and I'm still fighting strong! 

 'Forever Blessed With Every Breath' this is so so true, ever since my diagnosis I have NEVER took one breath for granted. I am eternally grateful for each and every single breath I take, and I will be forever.

I have beaten CF so far, and I will continue to do so no matter how many obstacles get in my way. I will do it all with a huge smile on my face.

I just want to say a huge Thankyou to everyone who has supported me through the past 8 years, it hasn't been easy, but with everyone's support it makes it a lot easier to deal with. I love you all!

Thankyou for reading my blog, 

Speak soon.

Emily xo

New portacath!!

Hi everyone!

It's been 1 week (and one day) since I had my second portacath placed, and I'm feeling good. I'm still in quite a bit of pain, and still taking pain relief, but I'm hoping when I get my needle removed tomorrow I will be able to move my arm slightly better. The operation itself went really well, I was in theatre for a little longer expected though, they originally said about One and a half hours but it ended up being 3 hours In Theatre and then a little more time in recovery. I was in a lot of pain when I woke up but the nurses were great and I had every single pain relief I could have had! (Morphine, general and local anaesthetic, paracetamol, ibuprofen and another one that I can't remember!) 

We just have to keep everything crossed that my second port will last just s long as my first one, which was around 7 years! I'm so grateful for my port, and I know for a fact I would struggle having my treatments without one due to me being really scared of needles. It is quite literally a life saver in my eyes!

This is the position of my new port! It's pretty much in the same place as last time which I'm happy about!

I'm never too old for a bravery certificate! Haha..

So as I said before I am getting my gripper needle removed tomorrow as it's the end of my 2 week course of IV antibiotics. I just can't wait to be able to get back to training properly.. (I hate sitting still and watching my team carry on without me!) 

Anyway, Thankyou for reading, and all of your continued support. :)

Speak soon, 

Emily xo

IVs, New port!

Hey guys! This will be a short update.

May is Cystic Fibrosis awareness month, so I've been trying to upload photos etc in social media to help raise a bit more awareness, CF definitely needs to be more well known, not only in the UK but world wide! Many people think it's 'Rare' well it's not, around 9,000 people in the UK alone have Cystic fibrosis, that's 1 in every 2,500 babies born!

Anyway, I'm doing okay at the moment, I started my IVs on May 1st for two weeks. I'm just a little tired but I'll be fine in a few days! My consultant ordered a ECG (echocardiogram) for me to make sure my heart is okay for some new tablets for my reflux, so I had that done today, and everything is great!

Tomorrow (6th May) I will be going into Manchester Children's Hospital to have a new port fitted. This will be done under general anaesthetic. I actually can't wait to have my new port, no more sore IVs, and the IVs themselves will be much easier to push through and we won't have to force them! Yay!

That's all for now, but I will update how my op went in a few days, Thankyou for supporting me!

Speak soon, Emily xo