Tuesday 31 January 2017

First post of 2017!

Hello everyone!

I want to start off by saying Happy new year to you all! (even though we are a month into 2017 all ready..)
I hope you all have had a lovely start to the year.

Anyway an update on my health.. To be honest I've been keeping quite well, I had a slight down side a few weeks ago, but the hospital gave me some antibiotics and I'm now currently on IVs for 2 weeks (one week left to go). So I'm feeling a lot better already. Starting my IVs was pretty strange this time as we are pretty sure that it will be my last course whilst under paediatrics! My out reach nurse who i have seen all the time from being just 8 years old put my gripper needle in and we were just chatting about the transition to the adult side of CF!

What else would a cheerleader do in the hospital?
Luckily for me, my current CF Consultant is following me to adults, as it is a new centre opening at my hospital in Blackpool so it won't be too much of a change all in one go. It's quite nerve racking changing CF teams, because I'm so used to certain nurses looking after me and It has been the same team since being diagnosed. So far i have met my adult  Liver specialist / gastroenterologist and he seems lovely, I've had 2 appointments there since transitioning only a couple of months ago. The first appointment was pretty much just to meet him, and talk about my health and get the result of recent blood tests. The second appointment was for a Fibroscan.
( Fibroscan uses elastography, which is a technique similar to ultrasound, that measures the stiffness of your liver. It is a non-invasive, painless alternative to a liver biopsy
The results for this scan come back pretty much straight away and it just confirmed that I do have Cirrhosis due to my Cystic Fibrosis related Liver Disease.


Anyway, Last weekend i had my first cheerleading competition this season, it was such a good weekend with my team. I competed in two routines, a Senior level 2 group stunt and Senior coed level 4 - We came 1st in both divisions! 































That's all for now, Thankyou so much for reading.
Lots of love,
Emily xo

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