First update of 2015..

I want to start by saying Happy new year! I haven't posted since December, as I've been ill, and busy so I've not really had the time!

But since last time I've had another course of IV antibiotics which I started on the 5th February (I think) for two weeks. But I've been having a lot of trouble with my portacath. For those of you that don't know what a portacath (Port) is, it's a little device under my skin which is connected to the main veins so when I have my IVs they get pumped through and can go straight into my system. I've had my port for around 7 years now, so the hospital think I've 'out grown' it, and after a lineagram, flushes and stuff pushed through to unblock it I've finally been referred to go to Manchester Children's Hospital to see about having a new one placed. We don't have a date through yet but hopefully we will soon.

I also had an appointment with my Liver specialist at Manchester Children's. It was okay, but some of the news could've been better to be honest! My liver is okay, it's still enlarged and scarred but that can't really get any better. However my spleen as grown around 3cm in less than a year (8 months ish) which is quite a lot, and as its growing it's 'eating up' my platelets, causing my platelet levels to drop. My Platelet levels should be 150, mine are 102. There isn't much they can do about it right now, we just have to keep an eye on me for easy bruising, or bleeding when I'm sick etc. If any of that happens then my DR said I'd probably need a blood transfusion and if my spleen keeps growing then it could be a possibility to have it removed in the future.

 

Other than all of this I'm feeling okay at the moment, apart from a little cold and sore throat but that's nothing I can't handle! I've also been training a lot lately, as in less than 2 weeks I have ICC nationals. One of the biggest Cheerleading competitions in the UK! I'm really excited to compete and to meet up with all my friends from other teams, I will update after the competition.

Thanks for reading guys, speak soon.

Emily xo