Time for IVs again!

Hi guys!
So as you all know I've not been feeling 100% since i came off holiday to be honest.

But some how I've managed to stay away from the IVs this long, just being on a few oral antibiotics every now and then.

But now it's been 12 weeks and i can tell that i really do need my IVs, so I'm starting them on Wednesday..

I'll update more on my IVs, how the hospital goes and if i get the results for my PH study on Wednesday or Thursday!

~Halloween!~

I hope everyone had a good Halloween?
I went to the Pleasure beach with my best friend, and a friend from Essex, that i met in turkey!
We had a really good night, Then on the Saturday me and my family, and our friends from Essex went to our friends Halloween party, I was Alice (Alice in wonderland) , My mum was a Vampire and my dad was Beetle juice! It was such a laugh as i had never seen them dress up before!

Thankyou for reading guys, speak to you soon, xo

Finished my PH study!

Hello!
so yesterday (28/10/2014) i started my PH study test. For those of you that don't know what it is, It's basically a tube that goes through my nose, down my throat and into my gullet, just above my stomach. It's to measure my acid levels for reflux, as i have it quite bad the doctors said at my last clinic that they want to change some of my medication around to try and keep it under control.

I wasn't looking forward to this test at all, as I'm not good with things  in the back of my throat, I've had NG (feeding tubes) in the past and they didn't end well! But i knew that i had to have it done..

As soon as i went in the room and the nurse was getting the tube ready i just started getting distressed, nervous and all panicky. She explained it all to me and then i just lost it, the tears were flowing and i just wasn't co-operating! 

After a while i decided to just get it done, as i thought the sooner i get it in the sooner it comes out, so the nurse attempted to put the tube in, it got so far and then it came straight back up... in puke.

So then i was really agitated and i started to have a coughing fit, after another 10 minutes or so we had another attempt, and it FINALLY went in. I was in a bit of pain in my throat and it was quite uncomfortable but i had to put up with it. I barely ate anything whilst the study was on, and i couldn't even take my tablets as they got stuck in my throat!

I'm just thankful it's over, and hopefully i won't need another one. EVER!

Thanks for reading guys!
Speak to you all soon, bye xo

PH study

Hi guys!

so this week I have had to stop my Omeprazole as i have a PH study on Tuesday.

My Omeprazole is for my Reflux. I suffer quite bad with it, and i have hated not taking the tablets this week as it's just getting worse and worse. However i know that this PH study will give us results to tell us what we need to do for the future!

I've never had a PH study so I'm a little nervous for it, as its a tube in my nose and down my throat, it just puts me in mind of when i was younger and the nurses tried to put me a NG tube in (feeding tube, as i wasn't putting on weight) they tried 3 or 4 times and i just puked them ALL out! (eww, gross i know!) So I'm hoping I don't do that with this test.

So please keep your fingers crossed for me, and thoughts and prayers would be good.

Speak to you all soon, xo

16th Birthday!

Hey Guys!
Yesterday was my 16th Birthday, i had an amazing day in Manchester with my family.
We went shopping in the Arndale center, and then we had a meal in TGI Fridays.

I got some really amazing cards and gifts including an Iphone 5s, a Pandora ring (shown in the photo) , a phone case, some Hollister spray,                                                   some money, i got my hair done and i still have some more to come of family and friends!

So overall it was a really good (and tiring) day!

Thankyou to everyone who wished me a happy birthday!
xo

wow

Hi Guys!
So recently i have shared my bucket list onto my blog, and i didn't expect anything from it, i just thought 'i may as well share it so people know what i want to achieve in my life :) '

So within a day of my bucket list being published a young girl called Zoe contacted me and said that she wants to help me achieve some of my wishes!
She set up a Facebook page called 'Emily Bonney's Army' and also created a Gofundme page so people can donate to it, and then it will go into a fund and help me complete my bucket list!

I was so overwhelmed with all the support of people, not just on facebook, but also my Friends, Family and all of my Social media family!

If you want to donate to the gofundme page i will leave the link below!

http://www.gofundme.com/fqi8ow

Thank you so much guys xo

Holiday, antibiotics, and scotlanddd

So I haven't posted in forever, but I've been so busy, ill, and then my ipad broke.. Again!

But since I last posted I went on holiday to turkey for 16 nights with my mum and dad, it was soo good, we didn't want to come home!

Around the second week of the holiday I started with a bad cough, but we always take extra antibiotics with us when we go abroad just incase, so I started on a 2 week course of augamentin. By the time we got home we thought the cough would have gone, or at least died down, but it went the opposite way, I ended up feeling really down and I had no energy to do ANYTHING.

So not even a week back in the country and I ended up at the Childrens assessment unit at the hospital, they were questioning Whether to start my Ivs, but as I'd only finished them about 4 weeks ago we said no and off we went with yet again more antibiotics. Long story short, my chest just kept getting worse,  and I still had 0% energy, so we went back up to the hospital and we started on some stronger antibiotics and we upped my azithromycin, I'm starting to feel a lot better, still not 100% but I'm getting there!

We also had a week up in Scotland to see our family, and we met up with my mums cousins who live in Canada! We had a great time, visiting Edinburgh and of course SHOPPING!

Annual review..

Today (Wednesday 4th June) I had my annual review, this is a 3 hour appointment where I see my CF consultant, my physiotherapist, dietician, out reach nurse and then I also see the CF doctor from royal Manchester childrens hospital, the dietician, nurse, and physiotherapist also from RMCH.

It went really well to be honest, I have been added on some more Vitamin tablets, as my vitamin D levels are really low, they're supposed to over 50 and mine are only 13, but it's nothing too major and not to worry about it. The appointment was long but they did go through everything with us, they went through all my medication and upped some of the tablets to the higher dosage to keep on top of things.

I had my lung function which was 95% so we are really happy with that, and my height and weight have gone up which is amazing as I haven't been in any weight supplements for 18 months now and I am now in the right centile for my age/height/weight!

There is a few tests coming up for me now, I will be having a ultrasound scan and chest X-Ray which I have yearly anyway but I will also be having a hearing test and a PH study for my acid reflux. I am currently on omeprazole for my reflux but I've been getting it quite bad at the moment so we're seeing if I need to be in any other medication for it. I'm not really looking forward to the PH study as It will include a tube going in my nose, down my throat and into my aosophegus.. I hate things like this, so it should be fun!! NOT! But if it has to be done, it has to be done..

Anyway on the 8th may I had my sinus surgery and they depended up doing a complete different operation in my nose as they decided the holes they were going to make bigger were actually okay! It was actually polyps which were making my sinuses blocked and causing my headaches, they count get all of the polyps out which means I may have to have another sinus operation to get the rest out, but it will be more invasive and more painful!

That's all for now, but it will update on things soon!💕